Recipient story
5-year-old girl with Down syndrome experiencing severe feeding difficulties
GIVIT
Ready to Learn
Christmas 2025
A 5-year-old girl diagnosed with Down syndrome is experiencing severe feeding difficulties. Her oral intake is very limited—she can only manage small amounts of soft food, which provide less than 15% of her daily nutritional needs. To meet her nutrition goals, she relies on a supplement (currently Pediasure + Fibre).
Due to illness, medical trauma, and ongoing oral motor delays, she now requires her nutritional supplements to be given through a nasogastric (NG) tube however this has caused her much trauma and distress and she is now refusing food. This means she urgently needs enteral feeding equipment to continue receiving adequate nutrition. Without this, she is at serious risk of growth failure, which could further impact her overall health and developmental progress.
The need for both the nutritional supplement and feeding equipment is essential, not optional. Unfortunately, the NDIS has declined funding, and the family is under significant financial strain to provide this.
Due to illness, medical trauma, and ongoing oral motor delays, she now requires her nutritional supplements to be given through a nasogastric (NG) tube however this has caused her much trauma and distress and she is now refusing food. This means she urgently needs enteral feeding equipment to continue receiving adequate nutrition. Without this, she is at serious risk of growth failure, which could further impact her overall health and developmental progress.
The need for both the nutritional supplement and feeding equipment is essential, not optional. Unfortunately, the NDIS has declined funding, and the family is under significant financial strain to provide this.
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