Recipient story
Family of 3, daughter diagnosed with Doose syndrome, a very rare form of epilepsy resulting in hundreds of seizures daily
Other hardship(s)
Family of 3, mum suffers from chronic pain and fatigue alongside other physical health conditions.
Their 3 yo daughter suddenly and unexpectedly began experiencing a significant amount of seizures in June of last year, and was subsequently diagnosed with a rare form of medication resistant epilepsy known as Doose syndrome.
She has regressed in her development as a result of her condition and has also been diagnosed with Global Developmental Delay.
The family have spent almost 12 months on this journey with many medical appointments and linking in with disability supports and carer supports for themselves. It has been an incredibly difficult and overwhelming time for the family and they could use some support.
Their 3 yo daughter suddenly and unexpectedly began experiencing a significant amount of seizures in June of last year, and was subsequently diagnosed with a rare form of medication resistant epilepsy known as Doose syndrome.
She has regressed in her development as a result of her condition and has also been diagnosed with Global Developmental Delay.
The family have spent almost 12 months on this journey with many medical appointments and linking in with disability supports and carer supports for themselves. It has been an incredibly difficult and overwhelming time for the family and they could use some support.
Other requests for this recipient
Hairdressing Services
Cleaning Service
Outdoor Chair
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